We have been making regular dr visits to Primary's trying to figure out how to help Paisley with her vocal cords & swallowing. We saw a new dr who right away said she was a good candidate for a surgery where they get a nerve by her ear & attach it to the nerve that got severed during her heart surgery, the same nerve that is attached to her vocal that is paralyzed. And hopefully the good nerve will go up the bad nerve and make the vocal cord move again. As the dr put it "its like rewiring a car battery". But they haven't done this surgery on kids any younger than 2, so in September Paisley went in and they gave her a shot of collagen into the vocal cord to help until she could have the surgery in March of this year. We saw the results of the shot right away, her voice was louder & she wasn't choking or throwing up as much.
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We won't know if the surgery worked for about a year, the good nerve needs time to grow up the bad nerve. She is so amazing with everything she has been through. Not that I like the reason she was wearing these hospital gowns, but how cute is she in them!
Oh some crazy things that happened the day of her surgery, there was another couple their with a little boy getting tubes in his ears & they kept looking over at us. So I asked about their son & they told us he was a twin, they were born early & his sister only lived a couple of days & her name was Paisley. (for those who don't know the parents have a name tag on their shirts of the child having something done). And that's why they kept looking at us. We were in the waiting room for about 3 hrs or so & their was another family there that had a little girl getting reconstructive surgery, they said she would be having surgery for most of the day. I am always very humbled every time we go to Primary's.
1 comment:
Sweet sweet Paisley! She is so brave. Love the pictures!
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